Sunday, May 25, 2014

17. Vacation Vacation

School's out for summer!

This is the first weekend of no-school.  We let the boys stay up way too late the last two nights, and we didn't have them do any chores.  All they did was play, play, and eat.  

On the last day of school, there was the awards ceremony to help celebrate the kids' accomplishments in school.  Little Iron Man got one for attendance, one for being a star student, and one for A/B Honor Roll.  He has his own struggles, mostly with impulse control.  Sometimes he acts out for attention, and he certainly misbehaves in school way more than he does at home.  He is extremely intelligent, and I think his behavior definitely affects his grades at times, but overall, he is a very good kid, and we are certainly proud of how well he has done.

At school, the kids have to take Accelerated Reader (AR) tests on the books they read.  J got an award for getting over 100 AR points, which apparently is difficult to do when you're in third grade.  However, I'm not exactly super proud of that award.  I'm pleased, of course, but each quarter, the kids were given an AR goal and they had to reach so many AR points each semester.  J would see how many points he would need, find ONE book that would give him those points, read the book, take the test, and then wouldn't take any more tests the rest of the semester.  It's a backwards way to be really lazy.  The books he chose weren't necessarily easy books, and he had to read and absorb the books so he could get all the points for the test.  He loves taking shortcuts.  Or maybe he's really a genius in hiding.  I don't know.

He also got a penmanship award for having the best cursive in his class.  He told me he knew he was going to get that one because it was just "so obvious" he had the best handwriting.  I've heard this is strange with kids with ASD, but J's talent is art, and for as clumsy and uncoordinated as he is with everything else, he can draw.  He can't tie his shoes, but he can draw very intricate things.

As far as honor roll goes, J got the A Honor Roll for getting all A's for the entire school year.  So far  he has never gotten a B.  When we had the conversation about his grades, he was not really sure what a B meant.  We briefly discussed grades and averages (which he understood better than I thought he would have) and I showed him his report card, which had his averages for each semester as well as his end-of-the-year average.  He was really disappointed in his Reading grade (a 95) and upset that in the third quarter he got a 99 in science, which was the only quarter he didn't get a 100.  I told him if his lowest grade is a 95, then we really have nothing to worry about.  He was pleased that the stamp on his report card said he got to graduate to the fourth grade.  

Third grade brought on a lot of ups and downs.  There were a lot of changes, but I feel that it was a great year of growth.  We found a new therapist that we like, J started going to the gifted program at school, we found a parent autism support group that was coupled with a  social-skills club for kids with autism, and because of all these different things he has greatly improved as a little person.  I have received a lot of comments from his teachers, family, and friends regarding his behavior, his improving social skills, and the way he integrates his new coping mechanisms.  

Hopefully we can continue to help him learn and grow this summer.  Therapy is the only thing that will continue; the rest will pick back up with the start of the new school year.  We are very excited to see where this summer takes us.  

Well, in FOUR DAYS it takes us to DISNEY WORLD, so the rest of the summer probably won't even be able to compare!

Tuesday, May 20, 2014

16. The Talk

I kept starting a blog post, writing a few words, and then deleting everything a few days later.  We've been so busy lately.  I did a Mother's Day project where I made cards for most of my friends who are moms, which means I handmade close to thirty cards.  Then I have been preparing for an arts project at the elementary school for the End of the Year Party, so I had to prep everything, which included cutting sheets of colored tissue paper into thousands of tiny squares.  Not hard work, but time consuming.  Since it's the end of the school year (only four days left!) I decided the kids would have a Beach Party.  They will make stained glass jellyfish for arts and crafts, eat pineapple, watermelon, and goldfish for snack, drink fruit punch, and listen to luau music.  After tomorrow, I can put that project under my belt, and then my focus will return to ensuring that everything is in alignment for our big trip to Disney World!

Summer brings other changes, including Autism Support Group being over until the start of the next school year in August.  I will honestly miss it, and I know J will miss going to his club.  The structure of the support group is wonderful; the ASD kids go to a class with other ASD kids and they're able to talk and learn about the struggles that having ASD can bring, the siblings can go to a childcare classroom, and the parents all gather for the support group.  It's wonderful.  It was nice to be surrounded by people who know.  Even the days I didn't speak much, it was comforting being around parents who were still talking about things I could relate to.  The parents of middle school and high school aged kids still had things to offer me as a parent of a third-grader: their experiences when their children were J's age and their experiences now that I may need to prepare myself for.

One of the issues that was brought up during our very last meeting was one we had experienced in our own house just last week.  I was shocked that other parents had gone through the exact same thing.  Our two older boys are getting older and beginning to be mildly curious about bodies, about girl bodies, about boy bodies, about bodies older than they are.  We found out one of them had Googled about bodies on his Nintendo DS, back before I had set any parental controls on it because I hadn't realized that Googling things was on it possible.  The other, we caught stark naked in the bathroom examining himself in the mirror.

None of this really bothered us as parents.  We  know our boys are growing older and are going to be curious about these things.  Stormy took one kid and I took the other, and we've explained that curiosity is normal, the feelings about girls (or hey, boys, we don't discriminate) is normal, but they can't Google what they're curious about because they're too young to understand how to filter through the results - and let's face it, Google can be a very dangerous place for a child who is curious about growing up.  We can go to the library and check out age-appropriate books if they're too embarrassed to ask us.  Anything that we need to do to keep them safe but informed.

Little Iron Man is neuro-typical, so he took the conversation well and just said okay and moved on.  J, on the other hand, is definitely going to be a more on-going process to make sure he understands.  I asked his therapist about it, because we didn't want to offer him information that he wasn't ready for, but it's obviously become something we need to start discussing.  She was very adamant that sex, puberty, and changes were something that we needed to talk about with J - with any child, but especially J.

Since J doesn't understand social constructs or the implications of his words and actions, it's especially important he understand the things he can/cannot do or say in social situations.  We've heard of other ASD kids getting in trouble for things that were innocent in nature for them, but other parents did not see it that way.  Quick examples are, a girl was curious about what boys looked like under their clothes, and asked the boy next door.  She was twelve, he was ten, and afterwards, all hell broke lose from the boy's parents.  Would it have happened if she had been a typical child?  I don't know.  I know that oftentimes parents of typical children are scared of what they don't know, uncomfortable about the differences between their child and one with ASD.  The other example is a sixteen-year-old boy was curious about this "sex thing" everyone was talking about, so he looked to the internet to find someone who would "show him" and he took the family car and drove fifty miles to meet-up with that person.  He didn't understand the implications of what he was doing, nor did he understand what would be happening when he did finally meet up with them.  He just wanted to know what "sex" meant.  (He was fine in the end, nothing bad happened to him, but it could have, very easily.)  Kids who are more neuro-typical understand why they're getting in trouble, why they can't do what they did.  Those two kids still haven't fully realized what their actions meant.  Nothing bad happened when I drove fifty miles, so why can't I do it again?  There's always this underlying logic with ASD kids; if it's logical to them, they cannot see anyone else's point.  The girl in the first example had never had a conversation about bodies, changes, or sex, so her actions were fueled entirely by curiosity and seeking to understand.  The boy had been talked to about those things, he wasn't a stranger to it, but again, he sought a greater understanding.  Which isn't by itself unnatural or bad, however it's the way he went about trying to quell that curiosity that was the problem.

The therapist said we have to talk to the kids in an age-appropriate way and slowly escalate the conversation as they get older.  We shouldn't over-talk the subject or they'll stop listening.  If we over-talk it they'll either get embarrassed because they're not ready for the conversation, or they'll tune us out, as kids often do if they feel lectured.  But it's important for them to know we are here, we're not scared of the subject, and we want them to be safe and happy.

It's been interesting figuring out the right verbiage to use, the right way to say it.  We never want our kids to feel ashamed of their bodies, of the private parts that make them distinctly male, which I think ends up being what happens to a lot of kids.  They get embarrassed or feel shame over their bodies, their curiosity, their feelings - both emotional and physical.  We all experience it in one way or another, some earlier than others, but it happens.  We can't be scared of our kids experiencing it as well.  If we want them to grow up into healthy adults with healthy relationships and/or marriages, then we have to help prepare them for that now.  If we get embarrassed about the subject or make them feel badly about it, then they may grow up associating shame and embarrassment regarding sex and their bodies.  That doesn't lead to healthy adults who have healthy relationships.

When we realized the boys were curious enough to Google certain things, albeit somewhat innocently, we weren't mad.  We didn't want them to associate anger with their curiosity.  We didn't want to scare them away from what they were feeling.  As parents, we want them to be healthy and safe - both of which can be hindered by Googling the wrong thing or finding something scary or illegal on the internet.

Little Iron Man will be more ready for the changes to come than J will; J is so immature because of his ASD in so many aspects that I can imagine that puberty will be far more confusing for him.  Or maybe they'll shock us and both will be equally lost or equally ready.  All I know is that I hope they both grow up to be well-adjusted and healthy adults, without shame or embarrassment.  I think that Iron Man will understand the implications of his words or actions more than J will.  I hope to get J to a place where he understands what is appropriate and inappropriate, even if he doesn't understand why, so that we can feel safe that even if he doesn't agree or understand something is inappropriate, he won't do it because he will know not to.

I should probably start getting some books to help facilitate the coming conversations that are going to happen over the next several years.  At least when I Google these things, I know how to filter through the results.